Uncategorized

PLIGHT

If you have made it this far, you are wondering what in the heck this subject heading is about. Sure, I made it obscure, but after the past half of a year of watching my husband and seeing what is going on with his health, I had to comment.

After six years of living with a limb salvage patient suffering with pancytopenia and a hot mess combo of more.., I have noticed a pattern of good days and bad. Like most people dealing with chronic pain, they can present better to friends and family for a few days and then after that, their resources are gone and boom! Mic drop.  Nothing left, just bed or couch-bound.

Six years of using a cane on his dominant arm to compensate for his bad leg when it collapses when he walks has taken a toll. It’s so sore it keeps him awake and uncomfortable past the pain relief he uses for his back and limb salvage in his leg.  The twisting way he has to walk when he doesn’t wear the uncomfortable brace lurches his hip in a way they aren’t meant to twist. Degeneration is happening.

He has tried cortisone in his shoulder joint and it was as if he got shot up with water. I have had them in the past for my own health issues and they provided help, but for some reason my shoulder has been resistant to any sort of change too.

On a positive note, I had RF Ablation on both of my hips over 5 months ago and the deep bone pain is gone. I wish I could get my husband to try it as I hardly have to use any sort of Tylenol or anything to help with the aches! To me, it is as if I had received a gift from God.

The past few years have made me very aware of my health and how much I need to take care of myself for the rest of my family. If you were suffering from anything, wouldn’t you get it taken care of or try to get yourself in as best of a way of feeling better as you could? Why would you want to make your family suffer in watching you endure constant suffering?? There are other things that can be done to help chronic pain such as RF Ablation. It has helped me so much. I see reports all of the time about HBOT (Hyperbaric Oxygen Therapy) and how much it helps physical and mental issues. Also, there is a new shot that goes in the Ganglion nerve in the neck that helps reduce the symptoms of PTSD right away.

When do you stop researching as a caregiver and when do you push and how do you know the difference? I recognize it as poking a literal bear. Make a recommendation and then gingerly tap dance back to my corner.

So what do you do?? Any of you veteran caregivers of veterans have any advice?

Advertisements

My man got blown up in Afghanistan and all I got is this crummy case of secondary PTSD and severe insomnia. Give me your free stuff.

My spouse got blown up in Afghanistan and all

I got is this crummy case of secondary PTSD and severe insomnia.

Forget the T-shirt! Give me your free stuff.

Let me bleed your non-profit dry. America owes us.

Six years ago we were newbies to the whole wounded veteran community. There were barely any resources out there on the Internet and as soon as Facebook really got going, it seems there was a new resource page added weekly. Somehow, I kept being automatically added to these groups. As soon as I would look at one, it was only a matter of a day or two before someone logged in with the question,”My husband got blown up in the war so is there an agency out there that will pay for our move?”  “We need a slab poured for our RV. Can so and so help with that?” Since when is an RV an emergency, a necessity, or something that requires others to assist you with?

Really? You didn’t foresee a move coming up in your family’s financial future? So why wouldn’t you start budgeting and saving money from the time you found out that you needed to leave your area? I get that emergencies/family issues happen. However, here are some of the others I have seen. “I need new tires on my SUV. Is there an org that can help with that?” “My veteran has PTSD, he needs a new chair that provides massage. Is there an org out there who can hook us up with that?” Or even better yet, “We need a new bed. Can someone buy us a Sleep Number bed?” I have heard women say that “America owes us. He sacrificed his life and got hurt, he deserves..xyz.” The sacrifice our military makes for our nation is not anything I would disagree with. However, at what point does personal accountability start and laziness end?

So if a massage chair fixes PTSD, what does a platinum-covered Japanese-manufactured and Tiffany’s logo-branded marital aid do for secondary PTSD and the rest of the issues caregivers suffer from? I want one of those!

What happened to personal accountability? We have a lot of medical bills that Tricare/Medicare don’t cover. We pay them ourselves, in addition to all of the other bills grown ups face in life such as new tires, house repairs and utility issues, car issues.. etc. You name it. Just paid $1700 worth of car insurance for six months. Yes, bills are horrible, but they are a part of daily life whether you are a veteran, a caregiver, a Leprechaun, or a Mummer. Bills exist and sadly, we all have to pay bills.

When you own a home, there is always something that needs to be repaired. Cars always need maintenance. If you can’t afford your car payments and your home payments and you are driving a fancy SUV and living in a fancy big home, you might need to switch to a Hyundai and move somewhere more affordable. Live within your means, people!  If money is tight and you only have one child, do you really think you can afford two more?

Non-profits are not there to supplement your income. Some are there to help you in a crisis, such as a short-term issue like the time of which you don’t get paid when you convert from active military to VA disability payments. It takes a good month and a half for that to switch over. When you know you are getting retired, start squirreling money away to help cover that gap. Be proactive, not reactive. Credit cards are not real income. If you use credit and you can’t pay it off, you are living under false financial pretenses. .

I don’t see many caregivers just wanting support and answers about health/medical/benefit questions, but more on material requests. What happened to helping each other out and giving advice and helping someone navigate through the bureaucracy we all have to tangle with? Many are in need of respite and retreats to have a bit of recharge time to themselves. Why not share the information when you hear of things?  What can you give me for free has become the mantra of many. Not what have I learned that I can share, but “gimme gimme gimme.”

My family and I were very fortunate in the kind things that some groups have done for us in the past, however we did not seek out those things.  Having a combat wounded veteran does not entitle you to spend all of his benefits and then look around for more which comes from either donors or tax payers. Entitlement is the plague of our nation.

grabbing hand

Alive Day

So, how does one celebrate an Alive Date? Especially when the warrior refuses?

In our situation, my husband Todd was wounded on 10/16/2009 in Afghanistan. He almost did not make it to Landshtul, let alone back to US soil. It was our fifteen year wedding anniversary when I received the phone call from Red Cross that he had been injured. It was10/15/2009 in Texas when I received the call while I was at work. I could not believe it.

During the blast that almost killed him, he lost two of his good friends. It has been four years, but once the end of September hits, the intensity and frequency of his nightmares increase, his mood gets more tense, and he takes on a more rigid mentality with our son and I. There are memorial fund raisers every year in October that honor one of his friends in Texas. However, Todd will never forget his friends as they died the day he lost his life as the way it used to be. He will never work as a Chemist again, a daily reminder as he fights to retain cognitive function due to the moderate Traumatic Brain Injury that renders him with frequent debilitating headaches that leave him panting and remove his voluntary muscle function. Out of the many changes that have been made to his body and mind, the mental changes are the ones that almost are worse. He wants more than anything to be able to do what he spent years of his life pursuing. The physical pain that rocks his limb salvage in his right femur and hip as well as the injury to his back keep him from being comfortable. His blood chemistry is always wrong. He never has enough white blood cells and out of what he has, there are too many of one type and not enough of another.  Sleep is never enough or without nightmares.

He is never without physical pain. Despite of these changes, there are many reasons to celebrate him being alive.

Even though he does not celebrate the fact he was spared, when he had so many catastrophic injuries at once and lost more blood at once than people typically ever survive from, he is still holding my hand. He has some long term memories. Some of them have disappeared, but he sometimes surprises me and will bring something up from earlier parts of our life together. 

Analytically, he can handle the complex math like Calculus and Physics – stuff I was never able to take in high school or college. I am so thankful for him because I could never help our teenaged son with homework in those subjects. It has been Todd. Even if it takes him longer than he harshly judges himself to recall a formula or a theory, he can still do it. He can still put music on my iPod and surprise me with a romantic song. He can hold me in his arms and make me feel safe. He loves me more than anything and can express it verbally. I have friends who have husbands who are unable to vocally communicate or hold them. Once he really surprised me by slow dancing with me at his sister’s wedding. I never expected him to put himself out there like that. I knew what a physical and emotional sacrifice it was for him to do that in front of all of those strangers and family.

 I feel like I have won the lottery. I thank God every day for sparing his life as our son and I benefit from him being in it daily. Our son and I celebrate it together. We call it the,”Yay, Todd was brought back to us day.” We hug him and tell him how grateful we are to have him in our lives. We tell him how we are thinking of his friends that have died and their families.

Remembering that day is bittersweet for him. Battling survivor’s guilt continually keeps him in a constant state of regret of what he could have done differently to save his friends. There was nothing that could have been done. Honoring him and reminding him of the good things he contributes to in our lives is something we do to help reinforce the goodness of him being alive.  We have been discussing renewing our wedding vows and perhaps celebrating them on an entirely different month and date. The anniversary just hasn’t been properly focused on like it should for the past four years. To me, it needs to be treasured, celebrated, and is something to be proud of. This year makes the NINETEENTH one! How many civilian couples make it to nineteen years without any of the added stressors of deployments or catastrophic injury? You better believe I am proud and so is he. This year is going to be one of the best ones ever. Image

Home Depot Foundation renovation project

Back in October, I was at a Wounded Warrior Project event for wives of wounded service members in Utah. They were an amazing bunch of wives. I was in my bedroom one night sleepily checking Facebook as I am part of a few closed pages that serve as resources for other caregivers of wounded veterans and wanted to make sure there wasn’t anyone in my own Austin area group needing critical help.

I saw the post from Heroesnightout.org mentioning a Home Depot Foundation project and that you had to log into the ap on Facebook and vote for them. So, like I do for most of their posts as they are an amazing non-profit that is local to me, I forwarded it on publicly and said,”Please vote for Heroes Night Out.” This voting had been going on for a few weeks, and Heroes Night Out was in a close tie off with Amvets. About an hour or two later, I get a call from the Co-founder, Wes Pierce who tells me that if HNO gets picked as the winner, they are nominating Todd and I to get the prize so we can get our home up to code.

I couldn’t believe it. I said, well, all we need is a riding mower for Todd and a shed to store it in as Todd tries to mow with a push mower and he just can’t do it and like most men, he won’t let me do it, nor will he let our fully capable son do it.

The very last night I was in Utah, it was the end of the contest. I could see that Amvets (also a great organization), was leading. I published a thank you concession post to Facebook and thanked all of the people near and far who voted for us to win. It was astonishing at all of the support from people we did not know. It put tears in my eyes to see how much people support their veterans.

I get another call from Wes, telling me that second place winners get $5k and I thought, “Sweet!!! There is the riding mower and the shed!” I was thrilled. At breakfast, one of my new friends, Taryn Esco (also a fun-loving sass like myself) said,”Tara, I think you won.” I did not believe her as she was smiling in a way that looked like she was kidding. It turns out she was right! The voting was so close and furious that the ap crashed and the Home Depot Foundation awarded the prize to both Amvets Ohio and Heroes Night Out! It was incredible as I did not expect that at all.

I called my husband and was so excited I’m sure I spoke in a tone only dogs could hear and in his typical stoic, calm way (sounds like Eeyore due to his brain injury) he said,”Yes, I know we won. Mrs. Gray told me at band practice early this morning.” I was ready to jump through the ceiling at the thought of $25K worth of home improvements! He was going to take a nap. Isn’t that funny!

Heroes Night Out held a big meeting and press conference with staff from the Home Depot Foundation’s office. They met us and shook our hands and it was incredible. They had so many people there ready to help and pick up a hammer. This was in November and our project was scheduled to begin in January, but we did not get rolling until February because the people putting this together are good and were still working other projects around ours. Let me tell you, we have a beautiful, modern kitchen in which I can have a toaster and a coffee maker on at the same time without blowing a fuse! I also have a nice beautiful central AC and heating system thanks to the awesome guys at Allgood Heating and Air.

It took about three months for the project to be completed. During that time, Heroes Night Out parked their RV in front of our home so Todd had somewhere to go and put his legs up when he was getting fatigued from helping with the projects. It also gave me a temporary kitchen to cook from while ours was being remodeled. It was a huge help.

This was a lengthy project as gutting of our home was needed. The roof where it connected to our wall studs had to be reinforced. There were things not so right that the expert eyes of Bill Bratrud caught. Our home is old, had suffered water and mold and did not have any existing central air conditioning. It had yucky paneling on most of the walls that was moldy. This seriously wrecked havoc on our allergies and asthma for my son and I. Allgood had to do the plumbing and a group of terrific electricians who volunteered from Dell Computer’s Facilities group took care of updating the electrical so we could handle the needs of a beautiful AC unit.

I met Michael Reichert, Manager of Home Depot Pflugerville, Jonathon Sprinkle with Integrity Constructive Solutions, LLC, the Contractor who created the plans for the entire remodel, Bill Bratrud, of Home Depot, who became our main project manager and Faeydra Shworm, of Home Depot, Pflugerville (she is the master behind kitchen planning). http://austincustomremodeling.com/

Jonathon called me and said can we come over and show you the plans? I said sure! The drawing he showed me was amazing. It was our old kitchen that had the clothes washing machine next to its 1950’s Imperial gas stove that was very temperamental. It even showed recessed lighting, dry-walled ceilings, walls, and brand new beautiful cupboards. It looked like the kitchen of a grown-up as everything matched. The people who put our initial kitchen together used whatever scrap cupboards they have so it was a hodgepodge of yuck. We had a roof leak years back while Todd was deployed and I couldn’t repair the asbestos ceiling tiles and they had turned colors and molded during the years. All of that is gone! Jonathon even installed granite counter tops, which was beyond my expectations.

I have beautiful new, reliable and well-insulated appliances. It is amazing how well my new GE Oven works! It is gas, but has the convection in it. It is amazing not having to take hours to bake something as this is new and works like a dream!

More than 2 people can be in my kitchen now, vs before where there was no floor space, certainly no counter space for more than one person to work in there at a time. Now my son can do his chores while I prepare meals. Yay! We even have brand new, energy-efficient windows. No more using a can or a ruler to hold the open windows open like we did with our old windows! These are beautiful. Todd can walk in with his cane and have room to stand in front of the fridge or in front of the counter to grab something to eat and not have any problems.

The Home Depot team put a new shed together in two days! It is really nice and they painted it and put a ramp on it so Todd could drive his riding mower into the shed after he mows the lawn. It was really amazing how fast they put that together.

Home Depot provided most of the volunteer labor and most products needed for all of the projects. Todd, Liam and I are eternally grateful to all of you who contributed to the renovation of our home. It is such an improvement to our daily quality of life. To all of the people who helped with the new shed and the home labor, we can not thank you enough. Our remodel is beautiful and we are amazed that this newly redesigned home is ours.

If you are a veteran in need of repairs to your home, contact your local veterans service organization as they have to contact the Home Depot Foundation on your behalf.

Wow, so you are forgetful just like me now.

He was a genius, one of those people that can understand the intricacies of Physics, the mathematical/science tango of Chemistry and yet grasp the beauty of a sonnet.  Four years ago, he was almost killed by an IED in Afghanistan. He flew 45 feet from the Humvee he was gunning from, and landed on his back with all of his gear, his Kevlar, and the roof of the Humvee on his chest and femur.

If anyone understands what the brain is like in the skull, its like an egg. There is the Dura, which covers the brain and in between the skull and the gray matter it exists to act like a shock absorber. The flight and impact of all that weight on my husband’s brain caused bleeding in between the Dura and the gray matter. We are lucky, there was nothing damaging the skull itself, the brain did not get lacerated, and the bleed has dissipated.

Picture the classic CPS coroner’s report for Shaken Baby Syndrome- basically a baby is shaken so hard either the brain injures itself against the other side of the skull or the brain stem is snapped during the abuse. Either way, its fatal usually for a baby.

Our service members are coming home with a very similar type of injury, My husband did.

When people see my husband, they can tell he has been through the mill. He walks with a severe limp from having his right leg salvaged from the blast. He has a bad back now from the blast and for the way his body lurches against his joints when he walks. It is not the walk of someone with a bad brain injury and that I am thankful for.

When I saw him in the hospital and he was able to speak and recall things from the past, I remember thinking whew.. thank God. He was on a serious amount of pain medications as his femur required many many surgeries for him to keep it.

Sure, we knew from the initial inpatient exams he had from the Traumatic Brain Injury team that he did have some delays in his working memory and processing (your short term memory that recalls phone numbers, quick instructions, etc.) We had many doctors say,”Welcome to my world. You now have to use sticky notes and make reminders for yourself.”

Is it really the same world when you lose IQ points due to the damage? No, not at all. You can be well spoken and still suffer a serious brain injury. There are many ways TBIs can impact the way you think, remember, feel, react to external stress, and your energy level.  My husband thankfully was a highly intelligent man before the blast. He did lose 25 IQ points. He still is analytically intelligent, and can grasp the science and math he did before. It takes him longer to figure it out, but his smarts are there.

For the average person, losing 25 IQ points would make you almost on the Down’s Syndrome scale or low retardation level of intelligence. It would be very substantial for you. The Army and the VA do not really acknowledge this. We had one Speech Therapist, Cora Madetzke, at the Temple, Texas VA acknowledge the loss to Todd. Her empathy and sympathy meant the world to us. She put some things together to help Todd work on his processing skills, his attention, and focus as his brain damage also caused some hearing loss.

I strongly recommend that you give your injured veteran or family member a good year and a good year off of a good portion of pain medicines as then you will really see what sort of residual damage and issues they will have. Some research claims that if you don’t work with the brain within the first year of the injury, it won’t help. I don’t believe that at all as it has been four years, and I do see gradual improvements in my husband.

What are the impacts of his Moderate Traumatic Brain Injury? Well, for starters the energy level has decreased a lot. He can not multitask at all. Some of the symptoms of PTSD and TBI overlap and magnify. If you want to get him mad, start talking to him while he is listening to his program on his laptop or trying to read a book. He can not read a line of a page and remember it two minutes later. He used to have a near-photographic memory and it really frustrates him to be in the middle of a story and he starts cursing because he forgot a name of a buddy, or a name of a scientific process, etc.

One of the worst things he suffers from the brain injury besides the inability to remember the things he wants to at will, are the headaches he suffers from. He gets them out of nowhere and they hit him square behind the eye. They hit him almost like a migraine in terms of the dehibilitation, but they don’t last for more than 45 minutes at the most. However, once he gets one he gets around 15-20 more that day.

Thank goodness for his neurologist we took him to at the Headache Clinic at Scott and White as they recommended an Alphastim for him. If you aren’t familiar with that and you suffer from headaches, TBI, and PTSD, you need to get one. Check out the link at alpha-stim.org. It is really incredible when you read the trials. It has helped Todd significantly. He used to get headaches at least 6 times a week. On a good week, it is down to 4 times a week. When he gets the headaches, he can’t open his eyes or control his voluntary muscle function. If he was drinking water before it hits, he chokes on it. Smells make him nauseated easily, even when not having the headaches. Perfumes he used to like really bother him now. 

When we drive to the VA in Temple from Taylor, most of the time he is so tired because he doesn’t sleep well still and the brain injury can cause fatigue. As soon as the car motor turns on, he is asleep in his chair. I see his feet moving, his right hand moving as if he is driving or being a TC in his sleep.

I have found some good brain resources along the way. If you are a veteran with a combat-related TBI, go to avbi.org as they will provide you with one free year of Lumosity, which is a great website for helping your brain. Non-TBI people can benefit from it as well.  AVBI also does provide you with neat cards and dogtags which you can write down your medical information so if you are in an accident you can list your TBI condition as well as the meds you take.

When you see someone you know has a brain injury, do NOT complete their sentences for them. Unless they ask you to help them search for a word. It is rude to do that without being asked by the patient. Do not act like you have the same problem, because you do NOT.

People in the community do not see my husband’s brain injury right away. He hides it pretty well. However, I had to impart some etiquette as I have seen people say some pretty damn insensitive things to him.

March was Brain Injury month, so please educate yourself on what you can do to help your family member adjust to their new life with changes to their brain. It is not easy, but time, acceptance of how their mind and processes have changed will make it so they can accept new ways of doing things to trigger their memories. Just remember to breathe and not get mad when you are asked the same thing over again or watch the same movie again. 🙂

Image

 

 

 

Happy Festivus

I don’t know about you, but I am pretty nauseated with the whole hoopla around the holidays. Perhaps it is because I am no longer a kid, Santa no longer exists, and every possible bill in the world seems to come up due in January.

Don’t get me wrong, I love putting up the tree with my family and attending the candlelight service at church. I just don’t see the need to spend a lot of money on adult gifts.

To me, the magic and spirit of Christmas is about the birth of Jesus. The hope and light for all the Christians appears on this day. It is a day of happiness, rejoicing, and hope.

Where did the word Hallmark, ToysRus, etc. come into play? Damn that Tannenbaum.

Jesus only received three gifts when he was born. Maybe that will be the next standard for next year. Before you call me a Scrooge, lets really examine this. I know someone who received a list of items someone wanted for Christmas. How is that any sort of gift if you are buying off of a list?

When I have to buy a gift for someone, I think of something that will make them smile or have an actual fun function in their life. I don’t just buy a generic gift. It may not be super expensive, but it definitely comes from the heart.

My son really causes me to enjoy Christmas. He has never been one to ask for a bunch of stuff. I love that about him. He doesn’t act spoiled. Hard to believe for an only child, but I am proud to say he is not.

When he puts of decorations, he smiles and plays each music box. It is like watching the younger version of him put them out for the first time.

When I told him that money this year was slim pickens, just like the artist, he smiled. I told him to give me a few ideas. I had a blast buying things for him. I ended up getting some other ideas and was able to really surprise him with some nice things. Watching him open his gifts was so much fun. He was so surprised.

So, I will end my senile rant on that more positive note.
I wish you all a Happy New Year.

Mermaid in the Water

I was treading water today while I was swimming at the YMCA. I was all of a sudden aware of exactly why I enjoy swimming so much, It is because all I can hear when I am doing the side stroke or the back stroke, is the sound of my own breathing,

I am fully engaged in doing what my body needs to do. For the first fifteen minutes of being in the water today before my muscles warmed up, I was afraid they were stiffening up and I would have to slow down or get out of the pool. It was only a quick momentary concern. I started to breathe and my body felt the oxygen and my muscles all of a sudden felt warmed up and ready to move through the water. 

When I looked at the clock, another 30 minutes went by and I had forgotten how many laps I did. It was interesting to me how the lungs and body work together to handle all of that aerobic activity. I swam in the pool and flpped on to my back. I could see the pretty water and the aquamarine color floating over my face. It made me feel so calm and peaceful, but yet competitive with myself. I was amazed at what I could accomplish. I even did my last lap as the crawl. It made me think of a lot of parallels in the life of a wounded soldier.

Smiles and Sunshine and Strong Shoulders

Today is a beautiful day. It went from 19 degrees and snowy of all things to a great spring day of what feels like 65 degrees. Definitely a quick flash of winter for us here in Texas.

After dealing with the loss of all of the things I have not allowed myself to feel, it is a nice feeling of the weight being lifted off of my shoulders. I think I saved myself a few visits to the counselor with last weekend’s revelations and thoughts I finally felt. Now we need to work on the task at hand, which is to get Todd the best help we can so we can help him figure out what his plan B will be in case he can not physically or mentally handle his job. His fear is that he will not be able to work due to his lack of short term memory. In order to do any sort of job, you have to remember what you have read a few minutes later. Sadly, he isn’t cut out for a physical job as he has no energy or stamina due to his blood disorder and leg injury.
However, his shoulders are strong, his willpower is there, and I know that things will get better in time. Just have to take it one day at a time and tonight, I get to go to Carnival with my friends. I am looking forward to dancing and spending time with my girlfriends.

15 months have flown by

I had a major breakdown of grief the other day – it started while at the muster for the community based wtu and as I was looking the nurse manager in the eye and the Col, who I love. It all of a sudden clicked with me that it has been 15 months since Todd got hurt and I haven’t seen a ton of improvement. My eyes started tearing up and it was all I could do to try to be non-emotional when covering all of what needed to be addressed and fighting to get him to go to the shepherd center. When I complained about his quality of life and how he needs and deserves better, they both agreed.

Saturday, on our way back from San Antonio, I got to stay with my bff and go to of all things, a Tupperware party. It was a lot of fun and I am going to have one. The next day I was taking a bath in her giant tub and all of a sudden I started crying as I remembered thinking that Todd resembled an old man getting out of his truck as he used his cane and negotiated the grass and rough terrain. It made me cry thinking that we are never going to be able to learn the Tango together. He had told me we would do that when he got home from Afghanistan. I cried for him having an uncertain health with his blood chemistry all whacked. I cried for the loss of the strong, agile man that I used to have. I cried for him suffering with his TBI and PTSD and how it has taken away his self esteem. I let it all out. I cried for all of the worry, the pain, and loss of his two friends that died that day. It was bottled up for so long and I needed to let it out. Now that I have let it out, I feel a bit clearer on what we need to do. My plan for him is clearer. Even though it will be tough on us, we will do what needs to be done to give him improved health and a reason for being.

January 2011

It has been a while since I have gotten to put some thoughts down on paper. We have been pretty busy with traveling back and forth to San Antonio for CSF’s Med Board medical appointments.

We also met at the Center For The Intrepid to get him fitted for a brace so his right leg that is considered a “salvage” stops buckling at the knee when he steps forward. He has had 8 surgeries on that leg so far. It is never a good thing for the army docs to call your limb a salvage. To me it gives a visual of a junkyard. Inside of his right leg, he has metal from his right knee to his hip bone. Now, due to his lack of white blood cells we really don’t want him to have to endure any more surgery on that leg. An infection would cause him to lose the leg at the hip and that would be incapable of a prosthetic.

He has a lot of hetero-topic ossification in the limb, which is bone growth that grows all through out the remaining muscle. In other words, it’s bone where he shouldn’t have any. It pinches in against the nerves. Just sitting in a hard wooden chair causes him excruciating pain.

The brace prototype did show some positive results!!! It will take Todd some getting used to working his remaining leg muscles differently with it, but in about 3 weeks, the real brace should be ready for him to try. I hope it helps him walk better. I think for him to walk upright and without a cane, would be the gift he certainly deserves.

Time will tell!